Past Events

We aim to achieve our goals by creating events that draw attention to the realities of rare disease through direct patient interaction, by creating a strong social media presence, and by building collaborations with rare disease advocacy groups and networks. We also aim to continue supporting other medical schools across North America to form their own rareDIGs. Finally, we are pursuing medical education needs assessment research to be able to develop interventions in medical school curriculum which will ultimately benefit patients with rare diseases.

Thank you to all our Participants!

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Ever wonder when to refer a patient to genetics? Do you know how to draw a pedigree? rareDIG is proud to present a pedigree-taking workshop in collaboration with students from the genetic counseling program. Learn which questions to ask, how to ask them, and the red flags of when to refer to genetics.

Pedigree Building Workshop

May 7, 2019

Workshop

National Rare Disease Day. Join rareDIG for our second annual event!

Rare Disease Day 2019

February 28, 2019

Rare Disease Day

Join the Rare Disease and Oncology Interest Groups for a special collaborative event! Firstly, Dr. Christina Sabapathy will give a workshop on how to approach rare cancers. Following this, we will hear the perspective of a parent with 2 children living with DGAT-1 mutation. It will be a very informative evening filled with diverse perspectives! Food will be served. Hope to see you there!

Rare Cancer Workshop + PPS Event

February 25, 2019

Patient Perspective Series

Do you have an opinion on pharma's involvement in drug research? What do you think about their influence over the patient experience? To hold you over until the next MSS GA, join us on Tuesday, November 20th at 6PM for rareDIG’s first ever debate club!

The Great Debate: Pharmaceutical Industry and Medical Research

November 20, 2018

Other

We are very thrilled to have the National Health policy director of the Canadian Hemophilia Society (CHS), Mr. David Page, who is a hemophiliac himself advocating for better conditions and treatments for people affected by this disease for more than 30 years. Ms. Claude Meilleur, head nurse of the hematology-oncology clinic of Ste-Justine hospital for coagulation disorders patients, will come to share with us her professional experience. We are also excited to have with us three patients living with hemophilia.

Hemophilia, a Patient Perspective Series

October 2, 2018

Patient Perspective Series

rareDIG is recruiting new executives! Join our 🦓 team! - VP Advocacy and Outreach - VP Finance and Fundraising.

Application Deadline!

September 23, 2018

Recruitment

Our third Patient Perspective Series (PPS) event will feature a family who has been directly affected by Loeys-Dietz Syndrome (a rare inherited connective tissue disorder). You may remember them from their inspiring talk at Rare Disease Day! Come learn from their story, diagnostic journey and involvement in the Loeys-Dietz Syndrome Foundation Canada. This is your chance to ask questions and learn directly from the rare disease patient experience.

Loeys-Dietz Syndrome

June 6th, 2018

Patient Perspective Series

rareDIG is proud to announce our next event with Dr. Laura Russell (medical genetics, Montreal Children's Hospital) who will lead a hands-on workshop through which medical students will develop their dysmorphology skills. The ability to detect patterns of dysmorphisms is valuable to physicians in all specialties, including primary care, to allow for earlier diagnosis and subspecialty referral. This is especially important if you will see children in your practice.

Dysmorphic Features Workshop

April 26th, 2018

Workshop

On February 28th, more than 80 countries across the world will be celebrating the “Rare Disease Day” to celebrate the tens of millions of individuals affected by one of the nearly 7,000 identified rare diseases. 2018 marks the tenth annual Rare Disease Day, which has grown exponentially over the year, and rareDIG is excited to hold their first event on this very special day.

Rare Disease Day 2018

February 28th, 2018

Rare Disease Day

The Patient's Perspective Series offers a unique opportunity to learn about a disease through patients’ eyes. Through their narrative, and by learning about their experiences, challenges and successes throughout their illness, rareDIG’s PPS aims to provide future physician with increased awareness of rare disorders.

Juvenile Idiopathic Arthritis

December 6th, 2017

Patient Perspective Series

Interested in rare diseases? Want to further develop skills to critically appraise a journal article, and know how these will translate to your future practice?

Join moderator Dr. Natascia Anastasio, MDCM, MSc, a 4th year resident in Medical Genetics for a beer, snacks and discuss the paper: “Use of Exome Sequencing for Infants in Intensive Care Units Ascertainment of Severe Single-Gene Disorders and Effect on Medical Management”.
(Meng et al. 2017) https://jamanetwork.com/journals/jamapediatrics/fullarticle/2654887

Exome Sequencing in Rare Disease

November 9th, 2017

n = rare Journal Club

Meet three patients with this rare autoimmune disease, and the executive director and a board member of the Platelet Disorder Support Association (PDSA). Learn from the patient experience!

Immune Thrombocytopenia

October 11th, 2017

Patient Perspective Series

Come and learn more about all the various clubs and what they have to offer. Find out about upcoming activities and ways to get involved!
In addition to Clubs and Interest Groups, you will have the opportunity to learn more about MSS standing committees, FMEQ, CFMS and more!

Medical Student's Society Club Day

September 13th, 2017

Recruitment

Events in Pictures

 

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© 2019 rareDIG McGill

Last Updated: September 5th, 2019

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