RareDIG + PIC presents: Patient Perspective Series - SMA
Time & Location
About The Event
RareDIG is proud to present its second event of the year with Pediatric Interest Group! Come and join us Tuesday, Febuary 11 to learn more patient experience of living with Spinal Muscular Atrophy.
The Patient’s Perspective Series offers a unique opportunity to learn about a disease through patients’ eyes. Through their narrative, and by learning about their experiences, challenges and successes throughout their illness, rareDIG’s PPS aims to provide future physician with increased awareness of rare disorders.
We are thrilled to have Emile, a 7 year old boy living with spinal muscular atrophy to enlighten us about the reality of living with this condition. He will be accompanied by his mother Amy who will also be able to share her experience as a parent of a SMA patient. Amy is also the president of CureSMA Quebec. If you want a sneak peak of their journey, feel free to go to their facebook page : https://m.facebook.com/emileetelli/
This is an amazing opportunity and experience. We hope to see you there!
Snacks will be provided - please RSVP via the Facebook page of the event