rareDIG
McGill's
Rare Disease
Interest Group
EQUIPPING FUTURE PHYSICIANS
FOR THE REALITY OF RARE DISEASE
Here is some information on KLA and Usher's syndrome, two rare diseases which will be explored during our event on Monday November 30th! Don't forget to sign up to receive the Zoom link!
https://mcgill.zoom.us/meeting/register/tZErf-uvpzgvE9xo1MacgsaoimVPq7SaziP4
During this difficult time, it is important to take the extra steps to flatten the curve and raise the line. Respecting the social distancing measures and learning more about COVID-19 are the first steps to make this happen! For our healthcare workers, our more vulnerable, for all of us, let’s #raisetheline!
For more information, please visit: https://www.osmosis.org/covid-19
#togetherwearestrong
OUR GOALS
CHANGE THE FUTURE - SHAPING A GENERATION OF PHYSICIANS
A VOICE FOR PEOPLE WITH RARE DISEASE
DELIVER THOUGHT
PROVOKING EVENTS
INTER-DISCIPLINARY NETWORKING
WHO
WE ARE
In Fall 2017, a group of McGill Medical Students started the Rare Disease Interest Group (rareDIG), the first student-run, rare disease advocacy group in Canada. We aim to encourage medical students to adopt attitudes that will benefit patients with rare diseases and we continue to provide a platform that promotes discussion and action within our continuously expanding community; raising awareness of rare diseases as a whole. Developing insight into the challenges patients with rare diseases face will inform the advocacy efforts of our colleagues and encourage the creation of public policy that can reduce inequities in care.
OUR
WORK
We give people with rare diseases a platform to share their experiences and collaborate with medical students.
OUR
PARTNERS
We are privileged to work with organizations that envision a similar future for rare disease.
OUR
TEAM
Innovation occurs when people with diverse perspectives come together to share ideas.
CRUNCHING THE NUMBERS
Over 7000
1 IN 12
80%
50%
35%
RARE DISEASES WORLDWIDE
CANADIANS AFFECTED
OF RARE DISEASES ARE GENETIC IN ORIGIN
OF RARE DISEASES PATIENTS ARE CHILDREN
OF DEATHS IN THE FIRST YEAR OF LIFE
ARE FROM RARE DISEASES
GET IN
TOUCH
WE'D LIKE TO HEAR FROM YOU.
WANT TO SHARE YOUR STORY AND BE FEATURED IN OUR HUMANS OF RARE DISEASE SEGMENT?
